About Us

The Jain Foundation was established by an endowment from the Jain family on September 1, 2005. It is a non-profit organization located in Bellevue, Washington, USA, whose mission is to cure muscular dystrophies caused by dysferlin protein deficiency. These dystrophies are collectively termed dysferlinopathy, and include Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi muscular dystrophy 1 (MMD1). As an orphan disease, dysferlinopathy receives little or no funding from traditional sources.

Dysferlin Research Institute

The Jain Foundation funds research projects around the world to better understand and develop therapies for this rare disease and plays an active role in managing the projects it funds. In addition to requiring accountability and transparency, the Jain Foundation encourages the sharing of ideas and resources between research teams in order to maximize efficiency and hasten development of a cure for dysferlinopathy. For more information, please visit the Jain Foundation's Dysferlin Research Institute.

Scientific Advisory Board

All proposal reviews and funding decisions are carried out exclusively by an in-house Scientific Advisory Board. Please click here for more information.

Patient Registry

The Jain Foundation also supports diagnosis of dysferlinopathy patients at the genetic level to enable rigorous natural history analysis of the clinical progression of dysferlinopathy. For more information about our patient registry, diagnostic resources, and clinical information, please visit Patients & Caregivers.

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